Oncology is about to take a huge step toward changing the way that cancer is understood and treated with the development of a breast cancer-specific prototype for a rapid learning system in cancer care. This system takes advantage of health IT advances (such as EHRs) in order to connect oncology practices, measure quality and performance, and provide physicians with decision support in real time.
The prototype is part of the American Society of Clinical Oncology’s (ASCO’s) vision for CancerLinQ a “system that assembles and analyzes millions of unconnected medical records in a central knowledge base, which will grow ‘smarter’ over time,” according to the organization.
Illustration courtesy of the American Society of Clinical Oncology
As part of ASCO’s focus on quality improvement, the protoype will use clinical practice guidelines and measures of the Quality Oncology Practice Initiative to build quality measurement and clinical decision tools. Next, breast cancer patient records and data (stripped of identifying information) imported from the electronic health records (EHRs) of academic centers and oncology practices will be added.
As a proof of concept, ASCO says that the prototype will:
- provide the foundational information and lessons learned to allow ASCO to move into a full-scale implementation;
- provide real-time, standardized, clinical decision support integration within a demonstration EHR;
- demonstrate a set of value-added tools; including a physician’s ability to measure their performance against a sub-set of QOPI measures in real-time;
- demonstrate the ability to capture data from a variety of sources and aggregate the data using novel methodologies;
- and create a demonstration which will allow exploration of data in unprecedented ways and generate hypotheses related to breast cancer.
Once the full technology platform is completed, CancerLinQ ultimately is expected to improve personalized treatment decisions by capturing patient information in real time at the point of care; provide decision support to cancer teams to adapt treatment plans to each patient and his or her cancer; and report on quality of care, compared with clinical guidelines and the outcomes of other patients. It’s also hoped that the system will help to “educate and empower patients by linking them to their cancer care teams and providing personalized treatment information at their fingertips.” Lastly, the system stands to be a powerful new data source for analysis of real-world quality and comparative effectiveness, as well as to generate new ideas for clinical research. It’s hoped that in time, this approach can be adapted to all types of cancer.
— Kerri Wachter
Photo courtesy of m.gifford (Flickr CC)
London may not be considered by everyone as exotic a locale as Beijing, but travel safety shouldn’t be overlooked across the pond. The CDC has several travel factsheets and resources for physicians and patients heading to the London Olympic Games, which start July 27 and run through Aug. 12.
Start by checking out Healthy Travel to the 2012 Olympic Games — the CDC’s rundown on basic health information for the UK, including a handy translation guide for UK health-related terms. If you’ve ever been curious about national healthcare, a mishap in London could answer a lot of questions. Of course, so could an informational website developed by the UK’s National Health Service. The CDC also offers a link to travel tips from the U.S. State Department.
Wondering about the top travel advice for Americans headed to the games? Update your routine vaccines, including measles. “In 2011, some U.S. residents who traveled abroad got measles. When they returned to the U.S. they caused 17 measles outbreaks in various communities.” Probably the most important tip for a Yank in London: look both ways. “Look right, look left, and look right again to avoid stepping into the path of traffic. In England, people drive on the left side of the road, not the right. Your safety is important. Road traffic is one of the leading causes of injury death to U.S. travelers in foreign countries.”
— Kerri Wachter
Photo courtesy of Thierry Geoffroy (Wikimedia CC)
Instead of focusing exclusively on risk factors for youth violence, it’s time to start looking at protective factors. At least that’s what a CDC expert panel recommended in a special supplement of the American Journal of Preventive Medicine.
Homicide continues to be the second leading cause of death for youth aged15-24, and the leading cause of death for African American youth, according the CDC. More than 700,000 young people aged 10 to 24 were treated in emergency departments in 2010 for injuries sustained due to violence.
While identifying risk factors for teen violence is a necessary component of combating the problem, the experts recognize that it’s also important to identify factors that protect youth against youth embracing violence — such as resilience, positive youth development and community assets. “Most youth, even those living in high risk situations, are not violent and more must be learned about the factors that are helping youth, protecting them from engaging in violent behavior so that others can benefit,” the experts wrote in the supplement.
The CDC convened the Expert Panel on Protective Factors for Youth Violence Perpetration to clarify unresolved definitional and analytic issues on protective factors; review the state of evidence regarding the factors that appropriately can be labeled as direct protective, buffering protective, or both; carry out new analyses of major longitudinal surveys of youth to discover new knowledge about protective factors; an assessing the implications of research identifying protective factors for prevention programs, policies, and future research. This supplement presents the group’s work on direct protective factors — in particular identifying factors that exhibit mostly direct protective effects.
For more information about youth violence in the United States, check out a number of resources available on the CDC’s violence prevention Web page.
— Kerri Wachter
Image courtesy of Sarah Jones via Wikimedia Commons (CC)
What does Title IX mean to you? Athletics is typically high up on the list for many people. Title IX has played an important role in getting girls and young women onto the field. On the 40th anniversary of the landmark gender equity in education legislation, U.S. Secretary of Education Arne Duncan noted in a speech, “when Title IX was enacted in 1972, less than 30,000 female students participated in sports and recreational programs at NCAA member institutions nationwide. Today, that number has increased nearly six-fold. And at the high school level, the number of girls participating in athletics has increased ten-fold since 1972, to three million girls today.”
In an era of nationwide public health concerns over childhood obesity, getting girls and young women involved in sports becomes even more important. However, Title IX’s expansion of school-based athletics programs has more far-reaching benefits as well. As Secretary Duncan pointed out, female athletes “are more likely to graduate from college than female students who don’t play sports.” Female athletes are also less likely to use drugs and become pregnant as teenagers.
Sports are only part of the Title IX picture though. In fact, neither the word “sports” nor “athletics” are used in the text of the legislation. The law has changed the academic landscape for female students.
U.S. Navy photo by Greg Vojtko (Public Domain)
Here’s a few things that you might not know:
- 57% of students in postsecondary education in 2009-2010 were women; women also accounted for 62.6% of students receiving a master’s degree.
- Since 1976, girls enrolled in gifted and talented education programs have outnumbered boys enrolled. In 2009, 8.1% of girls participated in gifted and talented education programs, compared to 7.4% of boys.
- A greater percentage of the girls in 7th or 8th grade (20%) are taking Algebra I, compared with boys (18%).
- Girls are evenly represented in biology and outnumber boys in chemistry, but are underrepresented in physics.
Welcome to middle age, Title IX. Let’s see what else you can do to get girls on the field and in the classroom.
Data from the “Gender Equity in Education A Data Snapshot” by the U.S. Department of Education’s Civil Rights Data Collection.
In case you’re looking for something more meaningful to read this summer than Fifty Shades of Grey or Abraham Lincoln: Vampire Hunter, The Institute of Medicine has released some dandy reports suitable for reading or for hiding those trashy beach novels.
First up, in May, IOM released Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation. The report focuses on five critical goals for preventing obesity:
- integrating physical activity into people’s daily lives,
- making healthy food and beverage options available everywhere,
- transforming marketing and messages about nutrition and activity,
- making schools a gateway to healthy weights, and
- galvanizing employers and health care professionals to support healthy lifestyles.
The committee outlined specific strategies include: requiring at least 60 minutes per day of physical education and activity in schools, industry-wide guidelines on which foods and beverages can be marketed to children and how, expansion of workplace wellness programs, taking full advantage of physicians’ roles to advocate for obesity prevention with patients and in the community, and increasing the availability of lower-calorie, healthier children’s meals in restaurants.
Also in May, IOM published Ethical and Scientific Issues in Studying the Safety of Approved Drugs. In response to the passage of the Food and Drug Administration Act in 2007, the FDA asked the IOM to evaluate scientific and ethical aspects of safety studies for approved drugs. The IOM concluded that the FDA’s current approach to drug oversight in the postmarket setting is not systematic enough and does not ensure that benefits and risks of drugs are assessed consistently over the drug’s life cycle. “Adopting a regulatory framework that is standardized across all drugs, yet flexible enough to adapt to regulatory decisions of differing complexity, could help make the agency’s decision-making process more predictable, transparent, and proactive. These changes could allow the FDA to better anticipate postapproval research needs and improve drug safety for all Americans.”
Finally, for the ambitious reader, the IOM had just released the discussion paper A CEO Checklist for High-Value Health Care. Despite risking costs, healthcare remains suboptimal in many areas. “To aid and accelerate the system-wide transformation necessary, we have assembled what we are calling “A CEO Checklist for High-Value Care” (the Checklist). The Checklist’s 10 items reflect the strategies that, in our experiences and those of others, have proven effective and essential to improving quality and reducing costs. They describe the foundational, infrastructure, care delivery, and feedback components of a system oriented around value, and represent basic opportunities—indeed obligations—for hospital and health care delivery system CEOs and Boards to improve the value of health care in their institutions.”
The 10 items include:
- Governance priority—visible and determined leadership by CEO and Board
- Culture of continuous improvement—commitment to ongoing, real-time learning
- IT best practices—automated, reliable information to and from the point of care
- Evidence protocols—effective, efficient, and consistent care
- Resource utilization—optimized use of personnel, physical space, and other resources
- Integrated care—right care, right setting, right providers, right teamwork
- Shared decision making—patient–clinician collaboration on care plans
- Targeted services—tailored community and clinic interventions for resource-intensive patients
- Embedded safeguards—supports and prompts to reduce injury and infection
- Internal transparency—visible progress in performance, outcomes, and costs
— Kerri Wachter (On Twitter @knwachter)
Courtesy of Whatsername?, via Creative Commons Attribution-Share Alike 3.0
Courtesy of BenFrantzDale, via Creative Commons Attribution-Share Alike 3.0
Does it seem like there’s a Starbucks on every corner? Or how about McDonald’s … those golden arches are everywhere, right? It may seem that way but neither the purveyor of caffeinated beverages or the fast food founder can measure up to tanning salons.
Despite the known risk of melanoma associated with indoor tanning, “there is a striking average of 42 tanning salons per city. That’s more than either Starbucks or McDonalds,” said Dr. Lauren Smith said at the annual meeting of the American Academy of Dermatology. Cities average only 19 Starbucks and 30 McDonald’s.
That makes my double shot, white chocolate mocha with double whip sound downright healthy.
— Kerri Wachter (On Twitter @knwachter)
Courtesy of Omegatron, via Creative Commons Attribution-Share Alike 3.0
Here are the top five contact allergens that are missed using the standing 28-allergen screening tray (T.R.U.E. Test), according to Dr. Donald V. Belsito, who presented the top 25 at the annual meeting of the American Contact Dermatitist Society in San Diego. The results are based on a retrospective analysis including 2,088 patients who were patch tested from 1995-2010.
4.) Propylene glycol
5.) DMDM hydantoin (1,3-Bis(hydroxymethyl)-5,5-dimethylimidazolidine-2,4-dione)
— Kerri Wachter